Navigating Systemic Mastocytosis with a Six-Year-Old Heroine
In Shadows We Walk, Seeking Light Amidst Heartbreak
Why do I lay bare the intricacies of our existence? Did you fathom the prolonged odyssey it takes to untangle the enigma of a rare affliction? In the delicate span of six years, my little one, cloaked in the diagnosis of Systemic Mastocytosis, has traversed a labyrinth of uncertainty. A disheartening revelation lingers: 1 in 50 children born with a rare…